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i am really excited!

i don't pay much attention to news about MS anymore.... i appreciate all the forwarded emails on this or that and how it works, but i don't follow anymore. my grandmother, bless her heart, cuts out every newspaper article that may seem promising. i did hold hope at first, but now i have settled into that "no real treatment, no cure" mentality. a few years ago i was very excited about a clinical trial that took bovine myelin in pill form and gave it to MS patients. the concept seemed sound - the immune system would attack the bovine myelin and not the human myelin. that is putting it simply, but all the details made perfect sense to me. yet, another disappointment. stem cell transplants are in fact working, but i would have to go to germany. it will be years before it will be easily available here.
however, i am excited about this study: http://www.nationalmssociety.org/Research-2003June11.asp
i've got a good feeling about this.....i just wish new orleans was one of the trial sites.



Sep. 28th, 2003 12:33 am (UTC)
sorry for being a little incomplete on my backstory, but what's your connection with ms? i must have missed something you posted about it. eek.

also, i emailed you about your jfk layover offering to be a tour guide if you felt like a strangers company to complete your adventures. ha.
Sep. 29th, 2003 07:46 am (UTC)
i have ms.

i'm up for a tour. i get in around 8 on the 4th and leave around 5 on the 5th of january.


don't fear death
melissa muses (or maia, you choose)


wandering does not make you a "gypsy."
why would you call yourself
after those who have no home?
long skirts and hoop earrings
do not make you a "gypsy."
why do you call yourself after
those who have no clothes?

"gypsy" is pejorative. please don't perpetuate the stereotype. educate yourself on what it really means to be a "gypsy" in this world.

Who are the Roma?

Decade of Roma Inclusion

Dženo Association

European Roma Rights Centre

Roma Balkans

Roma National Congress

Romani World



Rroma Media Network

Soros Roma Initiatives

Studii Romani

The European Union and Roma

The Patrin Webjournal: Romani Culture and History

Voice of Roma
World Bank Roma Initiatives

Have a Happy Day! :)

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